Pretty Bent Things

and other thoughts on living in a body that has never quite fit the mold

Why I don’t like most online support groups
CMT, Personal Stories Jill CMT, Personal Stories Jill

Why I don’t like most online support groups

I find a lot of online support groups draining as hell.

As someone who’s always been the only disabled person in the room, and who doesn’t have a huge support system, I’ve always been searching for some sense of community.

And when you have a rare disease like CMT, that usually means finding whatever free, open-to-everyone support group that exists on the internet. And while it’s a huge pro that spaces like these do exist, there are also some real cons.

Read More